The President of the Albinism Association of Nigeria (AAN), Dr Bisi Bamishe, has called on the government and relevant stakeholders to expedite the inclusion of skin screening and treatment in the National Health Insurance Scheme (NHIS).
Bamishe made the appeal during her welcome address at an event marking the International Albinism Awareness Day (IAAD) in Abuja.
The 2025 celebration, themed “Demanding Our Rights: Protect Our Skin, Preserve Our Lives”, was organised by AAN.
She described the theme as a powerful call for urgent action, emphasising the need for the NHIS to cater to the specific health challenges facing persons with albinism.
“The theme highlights the critical need to raise awareness about the severe health challenges, especially skin cancer, which disproportionately affects our community,” she said.
“It is a reminder to governments, civil society, the media, and the public that we must not be left behind in healthcare, protection, empowerment, and inclusion.”
Bamishe noted that harsh environmental conditions have led to increased incidences of skin cancer among people with albinism, many of whom are unable to afford treatment.
“One of the most pressing challenges is the harsh environmental conditions which have led to rising cases of skin cancer among our members. Many cannot afford treatment, and as a result, we are losing lives daily.
“We passionately appeal to the government, stakeholders and every concerned person to support the integration of skin screening and treatment into the NHIS.
“This intervention would save lives and offer hope to many.”
She also highlighted educational challenges facing students with albinism, particularly due to visual impairments, and called for the full implementation of the National Albinism Policy on Education.
“Relevant authorities must ensure prompt and adequate provision of necessary learning aids to facilitate inclusive and quality education.”
“May this year’s celebration renew our shared commitment to upholding the rights and dignity of persons with albinism in Nigeria.
“Let it inspire bolder advocacy, inclusive policies, and sustained investments in our health, education, and well-being. Above all, let it remind us and the world that we are worthy, strong, and we belong.”
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Bamishe also outlined the association’s achievements over the past two years, including expanding AAN chapters to 26 states, registering with national disability platforms, increasing visibility, and securing a dedicated project office.
“We have also strengthened relationships with critical stakeholders, laying foundations for meaningful social integration,” she added.
Chairman of the AAN Board of Trustees, Professor Sam Amadi, commended the association’s growing influence and structure.
“When we are united, we can articulate our needs upwards. Our strength should lie in our unity of purpose,” he said.
“There are reforms going on, but there are gaps and we need to do more in advocacy, especially teaching in schools. We are on track and by God’s grace, we will achieve our purpose.”
Also speaking, Mr Kaura Wakili, Chairman of the Joint National Association of Persons with Disabilities (JONAPWD), FCT Chapter, acknowledged the unique challenges faced by persons with albinism.
“We must continue to push for better healthcare, equal opportunities in education, employment, and protection from all forms of discrimination. Let’s work together to build a Nigeria where no one is left behind.”
A stakeholder, Mr Afam Kasim, encouraged persons with albinism to adopt protective measures against sun exposure to reduce the risk of skin cancer.
“Also, use sunscreen. If the Federal Government is supporting us, we should also protect ourselves. If we keep flaunting our skin to the sun, we will have issues.”
The event drew participants from public and private sectors, along with AAN executives from across the country.
